In 2010, Marta Bustos was diagnosed with Asperger’s Syndrome. After being diagnosed, she felt embarrassed and always wanted to hide her disorder. However, after starting a blog, she’s learned to open up and write about her feelings.
Jacki Bustos, Marta’s mother, always knew that her daughter wasn’t the same as other babies. Her mother says that she was always fussy, couldn’t be alone, would constantly blink her eyes, and didn’t speak a word until she was a year a half and then only full sentences.
After her diagnosis, Marta felt as though she needed to hide her disorder because of the stigma that followed it. Her mother says that she remembers crying after she found out because she was only familiar with low-functioning autistic individuals. Jacki Bustos also said that she had no reference point as to how their journey would be. That’s when Jacki decided to journal about her perspective and feelings on her daughter’s diagnosis.
Once Jacki got started on her blog, it quickly became a way to translate Marta’s everyday thoughts and actions. She was also able to connect with other families whose children have Asperger’s Syndrome.
Later on, Marta added to the blog. She finally “came out” as autistic and it has given her a sense of encouragement. She now understands that her disorder isn’t a problem, its part of who she is.
Along with the success from her blog, Marta has been invited to speak at the Autism Spectrum Disorder Entercational Conference. The organizer of the conference enjoyed Marta’s positive approach to living with Asperger’s. Marta is excited about speaking but her main hope it to help other people struggling the way she did.
By Sejal Sheth
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